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EFPIA
Newsletter
30 August 2013
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Highlight of the week

From our blog

Commercial confidentiality is a pinch point in roadmap for sharing clinical trials data
30 August 2013 (Publications)

After setting out data transparency principles, the industry is now making the case for self-regulation. But the question of what information – if any - [...] Read more

News

News

Publication of Results of EFPIA-PhRMA commissioned Patient Stakeholder survey
26 August 2013

Industry demonstrates commitment to sharing of information and dataEFPIA-PhRMA share the view that we need to improve the sharing of research data while protecting and retaining the privacy [...] Read more

From our blog

From our blog

27 August 2013: A Roadmap for Sharing Clinical Trial Data
30 August 2013 by Richard Bergström

On Tuesday my industry presented our commitments on data sharing at a conference “A roadmap for sharing clinical trial data”. It was important for us to get [...] Read more

From our blog

EFPIA-PhRMA Commitments: Breaking Down the Basics of Commitment 3
29 August 2013 by Richard Bergström

The debate on clinical trials data sharing so far has focused largely on a broad, general transparency – on making CT data available to the [...] Read more

Videos

Video

EFPIA Director General Richard Bergström on the Commitments for Clinical Trial Data Sharing

On July 24, EFPIA and PhRMA formally launched their Joint Principles for Responsible Clinical Trial Data Sharing to Benefit Patients. This commitment to data sharing will enhance research and scientific knowledge, advance patient care and improve public health. Under the Principles, biopharmaceutical companies will dramatically increase the amount of information.

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Video

EFPIA Disclosure Code - Richard Bergström

"The Disclosure Code has been approved by the General Assembly on 24 June 2013. The final edited versions of the Code has been submitted to Compliance Committee comments, and has been reviewed by legal counsel.

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What we are reading

What we are reading

Miniature brains grown in test tubes – a new path for neuroscience?
29 August 2013

Lab-grown 'organoids' resembling embryo brains could be used for modelling diseases and testing drugs.

Scientists have grown miniature human brains in test tubes, creating a "tool" that will allow them to watch how the organs develop in the womb and, they hope, increase their understanding of neurological and mental problems.

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About EFPIA updates
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The European Federation of Pharmaceutical Industries and Associations (EFPIA) represents the pharmaceutical industry operating in Europe. Through its direct membership of 34 national associations and 40 leading pharmaceutical companies, EFPIA is the voice on the EU scene of 1,900 companies committed to researching, developing and bringing to patients new medicines that will improve health and the quality of life around the world.
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B-1050 Brussels (Belgium)
Tel: +32 (0)2 626 25 55
E-mail: communications@efpia.eu
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