Last week, we were honored to join ECRD 2024 and sign an open letter calling on the next European leaders to:

• Maintain health at the forefront of future policies and programmes.
  
  
• Develop a comprehensive European Action Plan for Rare Diseases that bridges diverse policy areas and streamlines existing efforts with clear, measurable objectives.
  
  
• Immediately address the most pressing needs of the rare disease population by integrating the actions ‘within reach’ that we have collectively identified within the work programmes of the next years.

Read and sign the open letter here.