EFPIA Newsletter 24 October 2019

Highlight of the week #WeWontRest until we make rare disease even rarer Rare diseases are far more common than you might think, but treatments are rare. #WeWontRest until no one is left behind and no one will need to tackle rare diseases alone.

News     23 October 2019 Have your say and contribute to the strategic research agenda for a Public-Private Partnership... The goal is to create a unique platform that does not exist anywhere else, a European multi-sector Partnership for health... Read more →

Blogs     23 October 2019 MSD Policy Passport on Pharmaceutical Innovation (Guest blog) Creating better understanding about the complex world of pharmaceutical innovation Read more →         21 October 2019 Living with rare disease: hope for the future, access today #WeWontRest until we make treatment for rare diseases less rare Read more →

Events     08 NOV 2019   Evidence-based expertise for better policy-making Brussels Expert panel on effective ways of investing in health end of mandate conference Learn more →       19 NOV 2019   Data Protection in Health Research Brussels A dialogue among policymakers, authorities, manufacturers of medicinal products and medical technologies, and other... Learn more →

	21 NOV 2019			Improving health outcomes for people with diabetes: The role of data, access to innovation... European Parliament The role of data, access to innovation and integrated care Learn more →

	12 DEC 2019			Joint EFPIA & EFGCP Multi-Stakeholder Workshop on Paediatric Unmet Medical Needs Amsterdam, The Netherlands The workshop will be the opportunity to exchange opinions and develop mutually acceptable criteria for joint and informed... Learn more →

What we are reading Equal access to care for rare diseases 21 October 2019  (Friends of Europe) Read more → The status of rare diseases in Europe 21 October 2019  (Friends of Europe) Read more → Pelosi’s drug pricing plan puts medical innovation at risk 17 October 2019  (STAT) Read more →

About the EFPIA newsletter The European Federation of Pharmaceutical Industries and Associations (EFPIA) represents the pharmaceutical industry operating in Europe. Through its direct membership of 37 national associations and 40 leading pharmaceutical companies, EFPIA is the voice on the EU scene of 1,900 companies committed to researching, developing and bringing to patients new medicines that will improve health and the quality of life around the world.

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