EFPIA - NEWSLETTER

EFPIA Newsletter 18 April 2024

News

17 April 2024 Patient Information Leaflets: Putting Patients First

AESGP, EFPIA and Medicines for Europe publish joint recommendations for better patient information leaflets

Rare Disease Moonshot: breaking down barriers to accelerate research

The Rare Disease (RD) Moonshot was set up to boost public private collaborations in the areas where there are no treatment options and there is no R&D going on.

The RD Moonshot partners put together three sets of recommendations to highlight where public-private collaborations can add most value.

Click here to learn more on the recommendations to optimise clinical trials for rare disease.

Is Europe on track to be a world leader in rare diseases?

36 million Europeans live with a rare disease. The EU needs to scale up and improve the patient journey and diagnosis, which is different from a member state to another.  

Watch the full recording of the POLITICO webinar here.

Events

23 APR 2024

Data driven life course immunisation : What are we waiting for? Hybrid - Edegem and Online

A hybrid event uncovering what is needed to leverage the full potential of health data toward life course immunisation...

Learn more →

15 MAY 2024

12th European Conference on Rare Disease & Orphan Products Hybrid - Brussels and Online

The ECRD is the largest, patient-led, rare disease policy-shaping event held in Europe.

Learn more →

What we are reading

"Unbalanced" EU HTA Timelines Exacerbated By Rare Disease & Cancer Drugs 16 April 2024 (Pink Sheet)

Staying ahead: the case for a European Action Plan for Rare Diseases 16 April 2024 (Global Counsel)

Socio-Economic Value of Adult Immunisation Programmes 18 April 2024 (OHE)

The EU General Pharmaceutical Legislation & Clawbacks: Calculated impacts – both designed and... 18 April 2024 (Vital Transformation)

About the EFPIA newsletter

The European Federation of Pharmaceutical Industries and Associations (EFPIA) represents the pharmaceutical industry operating in Europe. Through its direct membership of 36 national associations and 39 leading pharmaceutical companies, EFPIA is the voice on the EU scene of 1,900 companies committed to researching, developing and bringing to patients new medicines that will improve health and the quality of life around the world.

Tel: +32 (0)2 626 25 55
Communications@efpia.eu

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