EFPIA - NEWSLETTER

Trouble reading this email? View it in your browser


		EFPIA Newsletter 2 March 2023

Rare Disease Day

Innovation is delivering therapies for people with rare diseases – but R&D needs support

Investment in R&D in Europe is vital if we are to tackle unmet medical needs.

In this blog, Nathalie Moll, EFPIA Director General, outlines how the story of rare diseases also explains why mindful policymaking and sustained investment are essential to turn science into treatments, and why we must continually renew our commitment to supporting Europe’s research and development eco-system. Read more

How the Rare Disease Moonshot can unlock science for patients

For most rare diseases, there is not enough science to translate into innovative products. It’s time to change this together through public-private collaboration.

Magda Chlebus, Executive Director of Science Policy & Regulatory Affairs at EFPIA, outlines the RD Moonshot as a concrete example of how public and private players, with patients as key partners, can add the momentum needed to advance the care of people with rare diseases. Read more

News

Because we can’t afford not to - Let’s make a joint health check for cardiovascular disease...
28 February 2023

Join us in the European Parliament Read more

Industry Statement on the earthquakes in Turkey and Syria
09 February 2023

Industry will continue to work with partners and authorities across Europe to provide further support where possible.... Read more

Blogs

Dynamic Regulatory Assessment will support more efficient treatment development for patients:...
02 March 2023 - Esteban Herrero-Martinez

Regulatory Road to Innovation Read more

This March we are moving together against Colorectal Cancer! #ECCAM2023
01 March 2023

#ECCAM2023 is an opportunity to encourage those eligible for colorectal cancer screening to get screened: early detection... Read more

Events

Women’s Brain Project special webinar
13 March 2023 (Online)

Sex, gender and the brain: Towards an inclusive research agenda Read more

GetReal Institute Annual Conference 2023
16 March 2023 (Utrecht, Netherlands)

A European Outlook on Real World Evidence in a Global Context Read more

DIA Europe 2023 - 35th Anniversary of the event
22 March 2023 (Basel, Switzerland)

35th Anniversary of the event Read more

The Estimands Academy for Trial Teams: Bringing estimands to life through case studies
30 March 2023 (Online)

Webinar 4 - Proposing Estimands from Different Perspectives: Patient, Clinician, Regulator, Health Technology Assessor... Read more

What we are reading

Gap between EU & US on pharmaceutical investments too wide - industry
On 28 February 2023 (Euronews)

The gap in pharmaceutical investments between the European Union and the United States is widening by too much, according... Read more

About the EFPIA newsletter

The European Federation of Pharmaceutical Industries and Associations (EFPIA) represents the pharmaceutical industry operating in Europe. Through its direct membership of 37 national associations and 40 leading pharmaceutical companies, EFPIA is the voice on the EU scene of 1,900 companies committed to researching, developing and bringing to patients new medicines that will improve health and the quality of life around the world.

Tel: +32 (0)2 626 25 55
E-mail:Communications@efpia.eu