To mark its second anniversary, representatives from patient organizations (EURORDIS), researchers (ERDERA), industry stakeholders (EFPIA), and MEP Voiculescu participated in a Euronews debate to discuss progress, challenges, and necessary systemic changes.
In the two years since its creation, the Rare Disease Moonshot has delivered a shared roadmap for public-private collaborations in the rare disease space. Through collective or individual actions, it has triggered or strengthened public-private collaborations in IHI, European Joint Programme Cofund on Rare Disease (EJP RD) and ERDERA — spanning clinical trials, regulatory science, translational research, and capacity building.
Read more here and watch the highlight video here.
