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European Federation of Pharmaceutical industries and associations
   

EFPIA Newsletter 28 February 2019

 
 
 
   

Rare Disease Awareness Day: Show Your Rare, Show Your Care

 
EFPIA staff supports the Rare Disease Awareness Day

No one can win the fight against rare disease on their own. EFPIA reaffirms our industry’s commitment to working with all parts of the eco-system to tackle the burden of rare diseases.

More information about the Rare Disease Day is available here. Read more


 
 
 
   

Blogs

 

#WeWontRest until cancer patients and their families look to the future with hope rather than...
28 February 2019 - Stefan Oschmann

Developing innovative medicines making a meaningful difference to people living with cancer remains our number one job... Read more

Rare Disease Awareness Day: Tackling the burden of rare disease
28 February 2019 - Nathalie Moll - Vinciane Pirard

No one can win the fight against rare disease on their own Read more

The need for incentives and concerted, collective, commitment to fight against AMR
28 February 2019 - Nathalie Moll

EFPIA reaffirms its commitment to be a part of the fight against AMR Read more

Rare Disease Day: Spot on Sarcomas (Guest blog)
28 February 2019

A guest blog by Kathrin Schuster, SPAEN Communications Read more

Haemophilia is scary!
01 January 0001

The story of Syrus, living with haemophilia B Read more

For the chance to have a normal family life
01 January 0001

The story of Sine, mother to a haemophilia A patient Read more

 
 
 
   

Videos

 

Children keep us up at night
And #WeWontRest until we’ve helped make the world a  healthier place for every single one of them. Read more

Stronger Together: Joining forces to fast-track results
Collaboration makes us stronger. Together we can transform the lives of patients - it is why #WeWontRest.
Read... Read more

 
 
 
   

Events

 

ICHOM conference 2019: Redefining value through patient centered outcomes
02 May 2019 (Rotterdam, The Netherlands)

The world-leading event for providers, life sciences and industry on value-based healthcare Read more

2019 China/EU Pharmaceutical Industry Forum
08 May 2019 (Hangzhou, China)

The workshop covers 4 different themes: Pharmaceuticals in the Environment, Pricing & Reimbursement, Compliance (marketing... Read more

 
 
 
   

What we are reading

 

Rare Disease Day: How the patient voice can tear down barriers
On 28 February 2019 (Pharmaphorum)

To have any impact, patient engagement needs to start with the drug development pathway, not at the point of licensing.... Read more

Auditors to probe EU efforts in tackling the worsening superbug problem
On 27 February 2019 (Science Business)

European Court of Auditors says it will investigate whether EU attempts to tackle antibiotic resistance provide value... Read more

EU steps closer to generics and biosimilars manufacturing waiver
On 27 February 2019 (Pharmaphorum)

A change to European rules on drug manufacturing that could benefit makers of generics and biosimilars is edging closer,... Read more