EFPIA Newsletter 29 February 2024

Rare Disease Day 2024     #WeWontRest   Discover how we are supporting innovation in rare disease: Imagining a future where rare diseases patients have a better chance at a healthy life, an oped by Nathalie Moll, EFPIA Director General Advancing innovation for rare disease patients: a call to action on Rare Disease Day 2024, an oped by Ricardo Marek, President Europe and Canada at Takeda Rare Disease Moonshot supports the EURORDIS-Rare Diseases Europe’s call for an EU action plan Read more →

News     26 February 2024 ‘The draft text of the European Health Data Space (EHDS) in trilogues sparks deep concerns... The draft text of the European Health Data Space (EHDS) in trilogues sparks deep concerns in the European healthcare... Read more →         23 February 2024 WTO Ministerial Conference in Abu Dhabi an opportunity to strengthen trade and health agenda... A joint statement calling on trade ministers to commit to a comprehensive trade and health agenda that will strengthen... Read more →

Blogs     26 February 2024 For healthcare to be sustainable, it must work for innovators, healthcare systems and patients... Properly designed policies can reward innovation, drive value and improve patients’ access to medicines. Read more →

Events     06 MAR 2024   REMEDi4ALL International Drug Repurposing Conference Barcelona Bridging boundaries: Innovating, connecting & reshaping drug repurposing Learn more →       07 MAR 2024   Digitally-enabled healthcare: Is our ecosystem on track? Brussels and online Organised by the EU Health Coalition. Learn more →

	12 APR 2024			EU-X-CT Public Stakeholders' Forum Brussels and online Making cross-border access to clinical trials a reality Learn more →

	16 APR 2024			Rare Diseases Forum: Securing Europe’s competitiveness in R&D for people living with... Brussels Join to address how and why innovation in tackling rare diseases can support the EU’s competitiveness agenda. Learn more →

What we are reading Belgium’s De Croo calls for EU ‘Nasdaq’ to boost biotech 27 February 2024  (Politico) Read more → New rare diseases action plan on horizon, Europe at turning point 27 February 2024  (Euractiv) Read more → European trade in pharmaceutical goods 18 February 2024  (copenhageneconomics.com) Read more →

About the EFPIA newsletter The European Federation of Pharmaceutical Industries and Associations (EFPIA) represents the pharmaceutical industry operating in Europe. Through its direct membership of 36 national associations and 39 leading pharmaceutical companies, EFPIA is the voice on the EU scene of 1,900 companies committed to researching, developing and bringing to patients new medicines that will improve health and the quality of life around the world.

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