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		EFPIA Newsletter 29 February 2024

Rare Disease Day 2024

#WeWontRest

Discover how we are supporting innovation in rare disease:

Imagining a future where rare diseases patients have a better chance at a healthy life, an oped by Nathalie Moll, EFPIA Director General
Advancing innovation for rare disease patients: a call to action on Rare Disease Day 2024, an oped by Ricardo Marek, President Europe and Canada at Takeda
Rare Disease Moonshot supports the EURORDIS-Rare Diseases Europe’s call for an EU action plan

‘The draft text of the European Health Data Space (EHDS) in trilogues sparks deep concerns...
26 February 2024

The draft text of the European Health Data Space (EHDS) in trilogues sparks deep concerns in the European healthcare... Read more

WTO Ministerial Conference in Abu Dhabi an opportunity to strengthen trade and health agenda...
23 February 2024

A joint statement calling on trade ministers to commit to a comprehensive trade and health agenda that will strengthen... Read more

Blogs

For healthcare to be sustainable, it must work for innovators, healthcare systems and patients...
26 February 2024 - Monica Shaw

Properly designed policies can reward innovation, drive value and improve patients’ access to medicines. Read more

Events

REMEDi4ALL International Drug Repurposing Conference
06 March 2024 (Barcelona)

Bridging boundaries: Innovating, connecting & reshaping drug repurposing Read more

Digitally-enabled healthcare: Is our ecosystem on track?
07 March 2024 (Brussels and online)

Organised by the EU Health Coalition. Read more

EU-X-CT Public Stakeholders' Forum
12 April 2024 (Brussels and online)

Making cross-border access to clinical trials a reality Read more

Rare Diseases Forum: Securing Europe’s competitiveness in R&D for people living with rare diseases...
16 April 2024 (Brussels)

Join to address how and why innovation in tackling rare diseases can support the EU’s competitiveness agenda. Read more

What we are reading

Belgium’s De Croo calls for EU ‘Nasdaq’ to boost biotech
On 27 February 2024 (Politico)

European companies often go to the technology-focused U.S. Nasdaq stock exchange to attract investment. The EU wants... Read more

New rare diseases action plan on horizon, Europe at turning point
On 27 February 2024 (Euractiv)

A new data-led, 360-comprehensive strategy is called for by rare disease experts.

European trade in pharmaceutical goods
On 18 February 2024 (copenhageneconomics.com)

New analysis on the size and importance of trade in pharmaceutical goods in the EU, based on data from Eurostat.

About the EFPIA newsletter

The European Federation of Pharmaceutical Industries and Associations (EFPIA) represents the pharmaceutical industry operating in Europe. Through its direct membership of 37 national associations and 40 leading pharmaceutical companies, EFPIA is the voice on the EU scene of 1,900 companies committed to researching, developing and bringing to patients new medicines that will improve health and the quality of life around the world.

Tel: +32 (0)2 626 25 55
E-mail:Communications@efpia.eu