Trouble reading this email? View it in your browser
European Federation of Pharmaceutical industries and associations
   

EFPIA Newsletter 29 May 2019

 
 
 
   

‘Three more months is a lot if you have six months to live’

 
A blog by Bettina Ryll

Bettina Ryll, a medically-trained scientist, started the Melanoma Patient Network Europe after her husband died of the disease. She knows the value of extending survival and improving quality of life.

‘Unless you have experienced a terminal cancer diagnosis, you have no concept of what three more months would mean at the end of your life,’ said Dr Ryll. ‘When you’re not sick, three months seems like nothing. When you know your time is limited, three months can mean a lot, especially when the quality of life is good.’

Dr Ryll was asked for her view of a WHO technical report on the pricing of cancer medicines which was critical of the cost of drugs that add around three months to patients’ lives. Read more


 
 
 
   

Blog

 

R&D: Why the EU bank invests in (patented) ideas (Guest blog)
29 May 2019 - Ari-Pekka Laitsaari

A favourable IP environment is essential to compensate for the disadvantages that life sciences companies face when... Read more

 
 
 
   

Videos

 

European Excellence: Making the EU a world leader in medical R&D
We want Europe to be the world leader in medical R&D. The pharmaceutical industry created a trade surplus of €79.7... Read more

Health For All: Bringing innovative health solutions to all patients
#WeWontRest until we bring innovative health solutions to all patients. Read more

Stronger Together: Joining forces to fast-track results
Collaboration makes us stronger. Together we can transform the lives of patients - it is why #WeWontRest. Read more

Protect The Spark
Every new treatment or cure starts with the spark of an idea. That spark has to be nurtured and cared for through the... Read more

 
 
 
   

Events

 

Connecting Healthcare - EFPIA 2019 Annual Conference
27 June 2019 (Radisson Blu Royal Hotel, Brussels, Belgium)

Making connections can advance patient care and support the European economy at a time of significant change and challenge... Read more

EFPIA Oncology Data Summit: Unleashing the potential of data to improve cancer care
18 June 2019 (Brussels)

The Summit will bring together cancer and data players from around Europe to actively participate in identifying the... Read more

IMI Stakeholder Forum 2019
12 June 2019 (Royal Museums of Fine Arts of Belgium)

Brain health and disease in the digital era - 2020 and beyond Read more

WIN 2019 Symposium
23 June 2019 (Paris, France)

A symposium dedicated to Innovation and global deployment of Precision Oncology Read more

 
 
 
   

Building a healthier future for Europe

 

Manifesto: Building a healthier future for Europe
06 September 2018 (Publications)

Together we can transform the lives of patients - it is why #WeWontRest Read more

 
 
 
   

What we are reading

 

IMI2 - Call 18 & 19 webinars
On 28 May 2019 (Innovative Medicines Initiative)

IMI will hold webinars on IMI2 – Call 18 & 19 from Friday 14 June to  Wednesday 26 June 2019 inclusive. All webinars... Read more

IMI pool of patient experts
On 28 May 2019 (Innovative Medicines Initiative)

IMI has involved patients in its projects and activities since the very beginning. Now, IMI plans to create a pool of... Read more

AMR incentives could be next big EU opportunity, pharma boss says
On 29 May 2019 (Euractiv)

Europe could become the first region worldwide to incentivise the fight anti-microbial resistance (AMR), Nathalie Moll,... Read more

Unlocking the potential of cancer data: the Oncology Data Summit
On 29 May 2019 (Politico Europe)

Looking for a “simple solution” to improve cancer care? Share data. That was one of the five recommendations put forward... Read more