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European Federation of Pharmaceutical industries and associations

EFPIA Newsletter 16 June 2022


EFPIA-EURORDIS Joint statement on Patient Access to Medicines for Rare Diseases

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This weeks marks the publication of the EFPIA-EURORDIS Joint statement on Patient Access to Medicines for Rare Diseases.

The statement is based on an 18-month structured dialogue between the two organisations focused on identifying proposals that can improve access to orphan medicines across Europe. At the same time the statement recognises areas where the two organisations have different perspectives.

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European Multi-Stakeholder Sounding Board Meeting on “Innovation – The key to sustainable cancer...
16 June 2022

Join the sounding board to discuss how high-quality care pathways and innovation can alleviate the pressure, improve... Read more




World innovation from Slovenia
14 June 2022 - Barbara Stegel

Frida humanoid robot to be tested in a hospital environment Read more




EPF Congress 2022 – Continuing the conversation on digital transformation
23 June 2022 (DoubleTree by Hilton, Brussels & Online)

You are invited. Read more

11th European Conference on Rare Diseases & Orphan Products
27 June 2022 (Virtual event)

Putting rare diseases policy into action. Read more

Meeting the Diabetes Challenge
28 June 2022 (Hybrid event)

The Role of Digital Tools, Data Registries, and Integrated Care in Improving Lives and Outcomes for People with Diabetes... Read more

From Crisis to Catalyst: Build resilience, back innovation and boost access
29 June 2022 (Concert Noble, Brussels, & Online)

You are invited to EFPIA 2022 Conference. Read more


What we are reading


Push to revamp rare disease EU framework intensifies before Czech presidency
On 15 June 2022 (Euractiv)

Improving screening tools and strengthening the incentive system for orphan drugs are among the main suggestions for... Read more

The time is now: How to restore Europe’s leading position in pharma innovation
On 25 May 2022 (Politico)

Europe needs a vibrant research ecosystem that will not only improve patient care, drive economic performance and resilience,... Read more