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European Federation of Pharmaceutical industries and associations
   

EFPIA Newsletter 24 September 2020

 
 
 
   

Supporting the development of rare disease R&D in Europe

 
Nathalie Moll on orphan medicines

"In normal times, rare diseases don’t always receive a high level of attention from the medical community. But, during the COVID-19 pandemic, it can seem that rare disease is even further down the agenda", says Nathalie Moll, Director General of the European Federation of Pharmaceutical Industries and Associations (EFPIA). 

"An incredible amount of attention has understandably been dedicated to COVID-19. This has had an impact on those living with other health conditions, including rare diseases. Throughout the crisis, pharma companies have worked tirelessly to ensure the continuity of clinical trials in extremely challenging circumstances."

Read more


 
 
 
   

Statements

 

Joint EFPIA – Be4ward Press Release announcing the publication of a new report “Benefits beyond...
24 September 2020

The EU Falsified Medicines Directive supports hospitals to realise significant benefits Read more

Vaccines Europe statement on the Hearing on "How to secure access to COVID-19 vaccines for...
22 September 2020

#WeWontRest until there is a COVID-19 vaccine for everyone Read more

 
 
 
   

Blogs

 

#FHaware2020 – A multi-stakeholder collaboration to resolve the burden of FH (Guest blog)
24 September 2020 - Magdalena Daccord

Every year, on September 24th, the international Familial Hypercholesterolemia (FH) community celebrates FH Awareness... Read more

21 September is World Alzheimer's Day (Guest blog)
21 September 2020 - Alessandro Marcuzzi

#WeWontRest in our mission to bring new hope to patients affected by devastating diseases with a high unmet medical... Read more

Recent data has given both us and the Alzheimer’s community some hope in an environment where...
21 September 2020 - Annabel Cowper

#WeWontRest until we can change the course of the disease for people living with Alzheimer’s disease and give them and... Read more

Alzheimer’s disease: The importance of early diagnosis (Guest blog)
21 September 2020 - Gerhard Tischler

#WeWontRest until we succeed in making meaningful improvements to the lives of people impacted by Alzheimer’s disease,... Read more

One Cold and Wet Night late in January 2020 (Guest blog)
21 September 2020 - Chris Curtis

We know times are very difficult and challenging for Head & Neck Cancer patients and their Caregivers. And these patients... Read more

 
 
 
   

Videos

 

Alzheimer’s Disease – The Time to Act is Now
We are at a turning point in our fight against Alzheimer's disease. Long-awaited new therapies are on the horizon. #WeWontRest... Read more

A new wave of innovation is bringing hope to patients living with Alzheimer’s
“We see a new wave of innovation bringing hope to patients living with Alzheimer’s. #WeWontRest as an industry in combatting... Read more

#WeWontRest until innovative treatments can hold the Alzheimer's disease in its tracks
"With new Alzheimer's treatments on the horizon, it will be possible to protect the patient’s cognitive abilities. But... Read more

Every Day Counts: Improving time to patient access to innovative oncology therapies in Europe
For cancer patients, Every Day Counts… but significant differences exist in patient access to innovative oncology therapies... Read more

Can you make enough COVID-19 vaccine to supply the whole world?
Finding a COVID-19 vaccine is one of the biggest challenges we’ve ever faced.
Developing and manufacturing a vaccine... Read more

Are we doing the best we can for the 60 million Europeans living with diabetes?
Diabetes is Europe’s silent health pandemic, but is the diagnosis, treatment and management of diabetes getting the... Read more

 
 
 
   

Upcoming EFPIA events

 

Neurological diseases: Lessons learnt from COVID and the future of neuroscience
28 September 2020 (Virtual event)

EFNA, EFPIA and EBC are delighted to invite you to join this virtual event. Read more

What delays access to medicines?
05 October 2020 (Virtual event)

Join our next debate about the root causes of unavailability of medicines and delays for patients across the EU #QuestionsInspireSolutions... Read more

 
 
 
   

#WeWontRest until Alzheimer's patients see a brighter future

 

Alzheimer’s Disease Health System Readiness – The Time to Act is Now
21 September 2020 (Publications)

We are at a turning point in our fight against dementia and Alzheimer’s disease. Long-awaited new therapies are on the... Read more

 
 
 
   

What we are reading

 

MEPs call for transparency in race for COVID vaccine amid rising vaccine hesitancy
On 22 September 2020 (Euractiv)

EU lawmakers from across the political spectrum stressed the need for transparency in the COVID-19 vaccine process in... Read more

How close is a coronavirus vaccine? | Free to read
On 23 September 2020 (Financial Times)

Out of 300 candidates, nine are in phase 3 trials, with some hoping for emergency use approval this year Read more