Diagnosis for type 2 diabetes is often in later life, but its impact can be devastating, with the elevated risk of complications and impact on quality of life weighing heavily on the minds of patients. Nobody should live with type 2 diabetes without appropriate treatment, yet many people have type 2 diabetes without realizing it. Being diagnosed early and controlling your blood sugar levels, reduces your risk of other health problems. The good thing is, you can do something about it. As a person with diabetes, you can proactively manage your disease. Adherence to diet and exercise and the most appropriate treatment is essential.
Is Type 2 Diabetes my fault? Because of its connection with diet and exercise, Type 2 diabetes is viewed by many as a self-inflicted disease. Although diet and lifestyle are risk factors, it is important to recognise that are other causes, including age, race, and family genetics, and dispel the myth that overweight and unhealthy lifestyle behaviours are the only causal factors.
For Type 1 diabetes, diagnosis is often during childhood meaning all those worries are carried by parents with the added burden of trying to teach, often very young, children about managing their diabetes, sugar intake, what to do in an emergency, blood tests and regular injections. And that often means educating teachers, class room assistants, coaches, carers and family members too.
And that’s why, while diabetes never gives up, neither will we. As an industry we are committed to the fight against diabetes, to finding treatments and cures, to improving the lives of people living with diabetes across Europe.
Diabetes: a rising epidemicThe diabetes pandemic is one of the biggest health and socio-economic challenges of our time.
To be an active partner in the fight against diabetes, improving the lives of everyone affected by the disease
We will do this by:
Improving diabetes diagnosis and management and focusing on delivering better healthcare for patients living with diabetes
- Raising the recognition of the value of innovation in diabetes
- Improving health outcomes in diabetes management
- Contributing to the sustainability of financing diabetes management for the future
Measuring health outcomes is an essential tool in understanding their variation; identifying areas for improvement and assessing the benefits and impacts of clinical practice and care pathways; guiding public health policies and interventions and facilitating integrated care pathways. Registries play a significant role in collecting, measuring and reporting the health data that can inform these processes. Given the complex nature of managing chronic diseases such as diabetes, registries and health data can play an essential role in catalysing an evidence-based approach to disease management.
A roundtable meeting was convened in Stockholm, Sweden, on 14 June 2019. This was organised by EFPIA Diabetes Platform and LIF Sweden, and the purpose was to focus on the use of health data and registries, in particular the Swedish National Diabetes Register (NDR). The event was part of a wider effort by the EFPIA Diabetes Platform to accelerate the shift towards outcome-based care in diabetes. It was the first of three events in the coming months, which aim at informing a policy paper to be published in 2019. Given the fundamental role that registries and health data could play in shaping the future of diabetes care and management, the Stockholm roundtable was a fitting place to start.
You can find here a report from the roundtable discussion.
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