3rd EURORDIS Multi-Stakeholder Symposium on Improving Patients’ Access to Rare Disease Therapies Crowne Plaza Brussels

An exceptional two-day event not to be missed!

Be part of a truly multi-stakeholder process aiming to establish sustainable and long-lasting solutions to improve patients’ access to rare disease therapies.

Views expressed by participants will go towards producing a roadmap document, which will offer practical and implementable solutions and set out the commitment of all players, working towards the goal of accelerating the development of, and guaranteeing timely and universal access to, rare disease therapies.

This roadmap will be broadly disseminated to European and national institutions ahead of the May 2019 European parliamentary elections.

This event is recommended for:
  • Patient advocates
  • Payers, health technology assessment (HTA) bodies, and national Competent Authorities
  • Policy makers and regulators
  • Clinicians and academics
  • Pharmaceutical and biotech industry leaders
  • Consultants and Investors
The event agenda is available here.

Pre-Symposium Webinars

Two webinars will take place ahead of this Symposium to provide the knowledge needed to effectively participate in discussions at the event. Both pre-registered Symposium participants and those of you who have not registered to attend are welcome to join the webinars.
  • First pre-symposium webinar: 24 January, 15.00 - 16.00 CET.
  • Second pre-symposium webinar: 31 January, 15h00 - 16h00 CET.
For more information about the event and registration, please click here.​