Define, track, measure and improve - How health data and registries can help improve health outcomes for people with diabetes
Given the complex nature of managing chronic diseases such as diabetes, registries and health data can play an essential role in catalysing an evidence-based approach to disease management.
Define, track, measure and improve - How health data and registries can help improve health outcomes for people with diabetes
Measuring health outcomes is an essential tool in understanding their variation; identifying areas for improvement and assessing the benefits and impacts of clinical practice and care pathways; guiding public health policies and interventions and facilitating integrated care pathways. Registries play a significant role in collecting, measuring and reporting the health data that can inform these processes. Given the complex nature of managing chronic diseases such as diabetes, registries and health data can play an essential role in catalysing an evidence-based approach to disease management.
A roundtable meeting was convened in Stockholm, Sweden, on 14 June 2019. This was organised by EFPIA Diabetes Platform and LIF Sweden, and the purpose was to focus on the use of health data and registries, in particular the Swedish National Diabetes Register (NDR). The event was part of a wider effort by the EFPIA Diabetes Platform to accelerate the shift towards outcome-based care in diabetes. It was the first of three events in the coming months, which aim at informing a policy paper to be published in 2019. Given the fundamental role that registries and health data could play in shaping the future of diabetes care and management, the Stockholm roundtable was a fitting place to start.