Tackling the challenges of Europe’s second biggest cause of death requires collaboration, partnership and novel approaches. That is the goal of the EFPIA oncology platform which brings together EFPIA member companies. The group’s aim is simple:
To transform the lives of patients diagnosed with cancer
Cancer - Europe’s second most common cause of death
Cancer remains the second most common cause of death in the EU and its incidence is on the rise as it is closely linked to demographic and lifestyle trends which are likely to persist or even amplify in the future. Furthermore, major disparities exist in access to cancer care and overall survival rates across Europe. The average 5-year relative survival rate for all cancer types combined range from 40% in Bulgaria to 64% in Sweden. Closing this gap could lead to over 270,000 more people surviving cancer for at least five years. To find out more about the impact of cancer in Europe click here.
But a brighter future is on the horizon
Over the last decade, significant advances have been achieved in cancer outcomes, bringing the average 5-year relative survival rate across all cancer types in Europe to 54% for cancers diagnosed between 2000 and 2007 up from 51.5% in 2000-2002. For European patients diagnosed in 2012, over 66,000 more will live for at least 5 years after diagnosis compared with if they had been diagnosed a decade earlier. While continued improvement in diagnosis and treatment delivery have certainly played their part, so too has the availability of a new generation of targeted treatments. Importantly, this transformation in the prospects for cancer suffers has been achieved within a largely unchanged budgetary envelope for cancer care, of around 5-6% of total healthcare expenditure in western markets.
The promise of major advances in the treatment of cancer has never been greater, with promising developments in immunotherapy and combination treatments, reflecting the intensive investment that academia and industry have made in the discovery and development of new approaches to the treatment of all forms of cancer and the investments that continue to be made by health systems to improve access, screening and early diagnosis. As R&D starts to explore innovative techniques to interrupt the carcinogenic process, hence intercepting cancer at its roots, #WeWontRest until cure replaces just treating cancer. You can find out more about individuals commitment to tackling cancer here.
To realise the potential means overcoming challenges
The number of therapy options available to adult patients has risen significantly; between 1996 and 2016, the number of treatments available to patients with lung cancer increased from four to 19.  New treatments with fewer side effects have also helped support efficiencies in cancer care, reducing hospital stays and enabling people to receive care at home or in the community.  This wave of innovation has generated an unprecedented level of choice and promise, with new treatments – and combinations thereof – continuously advancing treatment paradigms.
However, this innovation is also arriving at a time when many governments are maintaining flat or declining healthcare budgets. Health spending on cancer as a share of total health expenditure has been rather low (6% of total healthcare expenditure on average in the EU) and stable between 1995 and 2014 despite the growing incidence and relative burden of cancer. If every European country had the same cancer outcomes achieved in Sweden in 2012 , over a quarter of a million more people per year would survive for at least five additional years.  Europe’s cancer care faces a number of challenges:
- There is a mismatch between the rising burden of disease and a roughly flat spend on cancer care reflective of a sluggish economic recovery and tightening funding constraints
- There are inconsistencies in prioritisation of cancer care on the public policy agenda despite the prevailing disease burden and amplitude of future challenges
- There is a lack of readiness in healthcare systems to adjust to the rate and type of innovation in cancer treatment (e.g. multi-indication medicines, combinations, personalised medicine)
- There is a disconnect between regulatory and HTA / pricing & reimbursement procedures and restrictive HTA value assessment frameworks
- There are growing disparities in care delivery and outcomes within and across countries
But #WeWontRest until cancer is nothing to fear
As well as it members being at the cutting edge of new cancer treatments, the group brings together stakeholders from across Europe’s cancer care community to find common solutions to the key challenges in cancer care. Informed by the views of over 150 cancer experts across Europe the group’s priorities are:
- Improving the sustainability and integration of cancer care
- Accelerating the time it takes to get new treatments to patients
- Developing tailored pricing and reimbursement models for cancer medicines
1. Identify hurdles for patient access and develop a model process for accelerating the time it takes for patients to benefit from a new cancer medicine to include both regulatory approval and reimbursement decision to assess “how we connect regulatory bodies, HTA, and the commissioning of care”;
2. Assess current systems to understand what works and what does not across countries and measure performance using the following criteria: appropriate access, quality of coverage, and delays.
Oncology Data LandscapeThe oncology data landscape is fragmented and rapidly evolving, and it can be difficult to have a clear view of the area. Yet effective collection and use of oncology data is essential for diverse improvements in research, treatment, and the efficient running of health systems.
To address this lack of clarity, the EFPIA Oncology Platform has undertaken a research project on the ‘Oncology Data Landscape’. This research has included interviews with a wide range of stakeholders and experts on oncology data.
The project provides a mapping of oncology data sources and initiatives in Europe, and explores ways to make the use of oncology data more effective for patients and health systems. The overall report and narrative should help anyone looking for an overview of the situation of oncology data in Europe. The other materials cover specific aspects in more depth. And looking ahead, the project identifies strategic solutions that could help to improve the current situation.
The project comprises the following resources:
- Overall report: a detailed summary of the research conducted for the Oncology Data Landscape project
- Oncology data narrative: a short, overview presentation on the background to oncology data, main challenges to its use, and proposed solutions
- Data sources and initiatives: summary of data sources and archetypes, use cases for oncology data, and profiles of initiatives that are seeking to transform the way oncology data is used
- Barriers: Overview of barriers to the collection and use of oncology data
- Trends: Identification of trends affecting the health data landscape in Europe
- Strategic solutions: Gaps and opportunities in the oncology data landscape based on use cases and barriers, with three potential initiatives described in detail
- Country profiles: Summary of characteristics of 10 countries in their use of oncology data
To access more information on the work, publications and latest reports from the group, take a look at the downloads section.
Cancer data: Are you ready to meet your DigiTwin? (Guest blog)Predictive computer models will guide clinical decisions, helping clinicians choose the most effective prevention and treatment options for you12.06.19Read Article
Rethinking access to medicines in Lithuania (Guest blog)Lithuania is on the cusp of a major overhaul of its Health Technology Assessment (HTA) system. The changes, due to begin in July, reflect wider shifts in how quickly patients in the Baltic state will access innovative therapies in the years ahead06.06.19Read Article
Blinded by the light (Guest Blog)A first step towards trust could be a transparent conversation about the principles we as stakeholders have in common. The EFPIA Oncology Platform sees itself as an attempt to do so. One such principle is certainly: that there is no valuable innovation without a patient who can access and benefit from it06.06.19Read Article
‘Three more months is a lot if you have six months to live’ (Guest blog)Bettina Ryll, a medically-trained scientist, started the Melanoma Patient Network Europe after her husband died of the disease. She knows the value of extending survival and improving quality of life29.05.19Read Article
Cancer medicines: Why we must strengthen the link between price and value (Guest blog)A WHO Technical Report on pricing of cancer medicines has raised questions for its unorthodox view of value-based pricing. The report is critical of what it sees as industry over-investment in cancer medicines R&D and what is portrayed as excessive return on investment23.05.19Read Article
Unlocking the potential of cancer data: Announcing the Oncology Data SummitA catalyst for improving the use of data to deliver better outcomes for cancer patients25.04.19Read Article
At the crossroads of health inequalities in cancer (Guest blog)Improving health outcomes is a joint responsibility and requires collaboration amongst all stakeholders in health. We must act now to ensure that health inequalities between Eastern and Western countries do not become bigger in the future24.04.19Read Article
How should we value the innovative cancer medicines that are transforming patient outcomes?While our scientists, doctors and patients push the boundaries of medical science, it is crucial that we have evidence-based conversations about how to bring evidence-based medicines to those who need them28.03.19Read Article
#WeWontRest until cancer patients and their families look to the future with hope rather than fearDeveloping innovative medicines making a meaningful difference to people living with cancer remains our number one job28.02.19Read Article
There is plenty of buzz around genomics yet access to testing and treatments is still a challengeHow can Europe ensure that also European cancer patients benefit from those new treatments?14.02.19Read Article
Three steps to better cancer outcomesThe impact of cancer is growing but stakeholders are coming together to chart a course to a sustainable new approach to care04.02.19Read Article
#WorldCancerDay: We aim to create a world without cancerAn interview with Kees Roks, Head of Region (Europe) at Novartis Oncology04.02.19Read Article
Data pointsA blog by Deepak Khanna, Senior Vice President and Regional President, EMEAC Oncology for MSD01.02.19Read Article
Data: our secret weapon in the war on cancer (Guest blog)The digital revolution is coming for cancer – but only if we fix how we collect and use data05.12.18Read Article
How to improve patient care by accelerating the development, delivery and uptake of personalised medicine and diagnostics? (Guest blog)Reflections from the European Congress on Personalised Medicine06.12.18Read Article
#WeWontRest until cancer is nothing to fearTackling the challenges of Europe’s second biggest cause of death requires collaboration, partnership and novel approaches07.09.18Read Article
A guest blog from the UICC World Cancer CongressBreakthroughs are happening. Some are incremental. Some are transformative. One thing is certain #WeWontRest until cancer is nothing to fear.03.10.18Read Article
Taking action on cancer together - delivering the future of cancer medicines in EuropeThe 2018 of the European Health Forum Gastein edition focused on “Health and Sustainable Development - Bold political choices for Agenda 2030”16.10.18Read Article